Author Topic: For those with asthma or severe food allergies  (Read 843 times)

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Offline RevDoc

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For those with asthma or severe food allergies
« on: September 01, 2016, 02:02:14 PM »
 >:(

Dear Reader,

It may be one of the biggest ever cases of Big Pharma greed -- and it looks like we haven't been told half the story.

By now you've heard the shameful news of how drug maker Mylan Pharmaceuticals increased the price of life-saving EpiPen injections by more than 500 percent. Families and even ambulance services are having trouble affording the medicine.

Countless letters and petitions with hundreds of thousands of signatures have been sent by outraged Americans to both Mylan and Congress.

But a group of trade associations that are supposed to be looking out for people with allergies has been strangely silent.

Now new questions are being raised about whether Mylan bought that silence -- and whether the EpiPen price gouging could have been stopped before it got out of hand.

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No outrage from insiders
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Before Mylan entered the picture around 12 years ago, EpiPens were around $50 each. The device now costs six times that much, with a twin pack going for $600.

And it's not like Mylan even came up with the EpiPen idea in the first place. That honor goes to an obscure former NASA engineer named Sheldon Kaplan who died without sharing in -- or even asking for -- any of the billions Mylan has made on it.

But Mylan quietly kept raising the price of EpiPens (which are supposed to be replaced every year), so high that they even became too expensive for first responders to stock in ambulances.

That seemed to be the final straw that whipped up public outrage, resulting in major media coverage and a congressional inquiry.

But as The New York Times recently reported, three patient advocacy groups, which "typically are vocal on all issues related to food allergies" were largely mum.

Now we may know why.

It turns out, according to the Times, that Food Allergy Research & Education (FARE), the Asthma and Allergy Foundation of America (AAFA) and Allergy & Asthma Network are all listed as "allies" by Mylan. And Mylan reportedly has provided them with more than $10 million for "educational efforts," such as sponsorships and grants.

It looks like money doesn't just talk -- it may keep people from talking, too.

Now, as you might expect, these groups claim to have been "working behind the scenes" with the company to lower families' costs of EpiPens.

And even if you believe that's true, it doesn't look like those talks were very forceful or productive -- because the price of EpiPens kept skyrocketing anyway.

Fortunately, lots of angry citizens started taking matters into their own hands. This week, for example, a coalition of advocacy groups will be delivering a petition to Mylan CEO Heather Bresch signed by over half a million Americans.

To toss out a PR bone, Mylan just announced that it's going to produce a generic version of its own brand-name product and slash the price in half to $300.

But that's the biggest bunch of nonsense I've ever heard. Mylan could cut the price of EpiPens tomorrow if it wanted to.

In Canada, two pens now sell for $200 -- and in France it's even half that price!

"Mylan executives should be ashamed of themselves," says consumer advocacy group Public Citizen, adding that this issue won't go away until the price of this lifesaving treatment becomes affordable to all.

Whether or not anyone in your family relies on an EpiPen, it's vital to keep the momentum on this going. Please contact your Senators today and let them know exactly how you feel about this kind of profiteering.

To Your Good Health,

Jenny Thompson
HSI E-alerts

Sources:
"How parents harnessed the power of social media to challenge EpiPen prices" Tara Parker-Pope, August 25, 2016, The New York Times, well.blogs.nytimes.com
Dana

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Offline Jerry Rxman Griffin aka MuthaF'er

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Re: For those with asthma or severe food allergies
« Reply #1 on: September 01, 2016, 05:35:29 PM »
$600 is the WHOLESALE price. Mylan has offered up a little ass kissing recently by offering a coupon that brings the final price down to no more than $300. Still way too much.

Now much to my dismay I ordered a 100 tablet bottle of Fluoxetine 10mg tablets last night since the prescription called for a 1/2 tablet (5mg) dose. TOTAL shock when that blue MYLAN bottle arrived for over $1200 while a 1000 count bottle of the same med in a 20mg capsule costs approx. $50.00!! Mylan USED to be my favorite generic manufacturer. While I mostly despise the government regulating everything this is one company/industry that needs to get hammered!

One of the issues other than outright greed is that manufacturers are now going to insurance companies with VALUE pricing not based on any costs. One example is the advertised drug Harvoni for hep C. It carries a claimed 99% effective rate whether or not a patient has the active disease or just a detectable virus that is inactive. They are basically saying to the insurance companies they can either pay $1000 per DAY for 3 months, POTENTIALLY do a $250,000 liver transplant later otherwise or just let a patient die. NO guarantees on any options. SO now they are holding allergy patients hostage with EpiPens. PAY OR DIE! I should be out of this business in the next year. I'm very ashamed of the pharmaceutical industry. These people need to be put away as organized criminals for a long time. 
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Offline scottly

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Re: For those with asthma or severe food allergies
« Reply #2 on: September 01, 2016, 07:51:44 PM »
While I mostly despise the government regulating everything this is one company/industry that needs to get hammered!

I'm very ashamed of the pharmaceutical industry. These people need to be put away as organized criminals for a long time.
I agree!!!! The whole business of medical care has turned into just that, a business. The problem is rampant throughout the whole system, and has spiraled costs out of sight. The attitude of "pass the increased cost onto the insurance companies" really frosts me, as those costs are ultimately paid by us all in increased premiums, IF you can afford insurance. >:( >:( 
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Offline Duanob

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Re: For those with asthma or severe food allergies
« Reply #3 on: September 01, 2016, 07:57:40 PM »
Here is even more of a rub, it was our tax dollars that were spent on the research and development of the epipen for the military, Mylan never spent a dime on any R&D. I think the US Gov should take most Mylan's profits for payback on paying for all the work. Greedy bastards!
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Offline 754

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Re: For those with asthma or severe food allergies
« Reply #4 on: September 01, 2016, 08:28:33 PM »
So why can no one else make them ? Lifetime patent ?
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Offline madmtnmotors

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Re: For those with asthma or severe food allergies
« Reply #5 on: September 01, 2016, 08:50:46 PM »
To add insult to injury...

It costs less than one dollar per dose to produce.  >:(  >:(  >:(
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Offline Jerry Rxman Griffin aka MuthaF'er

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Re: For those with asthma or severe food allergies
« Reply #6 on: September 01, 2016, 08:58:24 PM »
It's also a device which is difficult to evaluate/duplicate unlike just the drug ingredient by itself. There have been 2 somewhat recent attempts at generics but due to unknown to me reasons are off the market. Perhaps the delivery system created potential obstacles to drug delivery?

Patents have mostly been 17 years from inception.
As of today 3/13/2012 my original owner 75 CB750F has made it through 3 wives, er EX-wives. Free at last.  ;-)