Topic: Please pray for my daughter

[burmashave]

Breathing on her own sounds like a big step, and it is certainly an answer to prayer.

[bill440cars]

       It look's like the last update that was posted on the link that Jay gave me, was posted on Aug 7th @ 6PM. I'll fouble check and see if I missed one.

       Seems like I should have checked before I spoke about Bre's progress.

        "She's still moving forward and progressing well, especially the last couple of days. Bre has been working very well with her therapists, and she is doing more and more when asked. The trach tube is still there, but they put a one way valve on it a couple of times a day so she breathes in through the trach, but she exhales from her nose and mouth. Supposed to get her used to things."

        Still, all in all, she seems to be coming along. Soon as I hear something, I'll try to get it out to you all, if Jay doesn't manage to do it himself. The strain on them has got to be tremendous!]
 

 

[Spikeybike]

 great news,  good lookin out bill ,  don't fret too much about us , you got your own problems.

[bill440cars]

great news,  good lookin out bill ,  don't fret too much about us , you got your own problems.

           Thanks for that, I just can't help being concerned about Bre and also the effect that it's having on Jay, his wife and family. When ever I can get to my PC and can, I try to check up on the progress. And, if there's some posted that Jay hasn't been able to post himself, I try to do it, but am sometimes distracted by the things that I am having to deal with. I guess it has to do with the way I was taught. I can't help but have feelings and concern for another person who might be going through some tough times like Jay's family. I get pleasure though, when there is something that I can do, that helps in any way.   Can't help it, that's just me.    

[bill440cars]

       Well, I just got an update on Bre's condition. They hadn't posted any updates for awhile because there hadn't been much to report, except the usual slow progress (while any progress IS good). He did say that the last few days were very good.

       Jay says:  As far as we can determine, the best place for Bre's condition is the Rehabilitation Institute of Chicago. We got a call from them Thursday, they have accepted her for a two week trial admission. Between them and her current facility, arrangements are being made for a medical flight to Chicago. There's a million details, but she will be there for at least two weeks within a week or two. If they determine that they can't do more for her than Sioux Falls can, she will move back. So that's the big news.

      Again, thanks to all who have supported us.

         J&K  (I put this in, just as it was posted in the update.  Bill) 

[Spikeybike]

if your in contact with jay , tell him us chicago members wanna bring her a care package. and meet him if he's gonna be here .

[burmashave]

I'm sure that would be appreciated, Spikey. It sounds that this will really be hard on Jay and his wife, but I pray that the move means that the Chicago Rehab. Institute feels that she is a good candidate for further recovery. I do know that sometimes the best place for a sick child is a big teaching hospital.

Thanks for the update.

[Jay B]

Agin Bill, Thanks for picking up the ball for me. It might be as soon as Wednesday, depending on a million details as to her transport. I'm going to be there for a few days, my wife  is going to live there for however long. Tough, buit that's the way it is. Spikey, PM your cell, love to get together if I can.

Once agian, I can't thank you all enough.

[Spikeybike]

i will , we'll meet up, i'm sure mkramer1121  has a bike you can ride, for a quick session of stress relief ,    or a drink,   whatever you have time for, my treat. 

  -Manny

[Grizzly]

I joined this site a few day's ago and have just found this thread. On reading the many posts I was moved by your situation and the kindness of the responses.

I do have some idea of what you and your family are going through. A few years ago my lad had to undergo unspeakable cranial surgery. Me and the wife both know hard it is to cope and Dennis is spot on. You do need to look after yourselves !!

You your family and Bre will be in our thoughts and prays tonight.

Grizzly

[bill440cars]

Agin Bill, Thanks for picking up the ball for me. It might be as soon as Wednesday, depending on a million details as to her transport. I'm going to be there for a few days, my wife  is going to live there for however long. Tough, buit that's the way it is. Spikey, PM your cell, love to get together if I can.

Once agian, I can't thank you all enough.

           Jay, I just figure that since I can get to the updates and I know from my own experience (with our Daughter, Karla), any little bit helps and that's what I'm trying to do, is help what ever I can. Of course w are ALL Praying for Bre's full recovery along with you and your wife (whole family, actually) health because something like this takes a lot out of folks. I'm just glad that there IS something that I can do. From the time that the update is posted until I can get it out, may be a little behind at times, but I'll do it ASAP.   

[Hawkster318]

Jay,

We are about 3 hours from Chicago in Wisconsin close to 90/94. Not sure if you're driving or what, but if you ever need a place to crash, our home is open to your family.

[Jay B]

Thanks John, and again, to everyone. It sounds like it will be Sept 3 at the earliest that we will go to Chicago. That will be the first available space. For now, things continue. Slow steady progress. Some days better than others, but we have found that her progress is directly tied to how well she rests the night before. Rehab is a very tiring job. Gotta run, more soon.

[HondaMan]

Rehab is a very tiring job. Gotta run, more soon.

Roger that!

I just found this thread, Jay: sorry to be a latecomer.
Will lift you all up, and take you to my Men's Group.

[Jay B]

Thanks Mark, She will be there Wed. I'm excited and scared at the same time. It's going to be very hard, I'll only be there a few days, then leave my girls (my wife and daughter) behind. I'm a farmer and harvest is right around the corner, I have to get it done. No choice. We will see what happens. Bre does continue to progress very slowly, hopefully faster in Chicago.

[Rocking-M]

Jay, get those crops in, we'll be praying for you daughter.

[BobbyR]

Jay, get those crops in, we'll be praying for you daughter.

+2 on that. Get those crops in so there will be a nice home for her to come back to.

[burmashave]

Jay, get those crops in, we'll be praying for you daughter.

+2 on that. Get those crops in so there will be a nice home for her to come back to.

+3. I hope that being busy with the harvest will help distract your mind just a bit.

[bill440cars]

     
         Jay, The prayers will be continuing for you all, for as long as needed and then some. I've always been told that you can NEVER have TOO much of a good thing! Hang in there, you all have a very strong Daughter.

                                Take care, Bill

[bill440cars]

   Guys, this was posted the 31st of Aug, after Jay mad his post here.

            As Jay said, she will be leaving on Wednesday. She will  arrive about noon. They will be driving out on Tuesday so that they can be at RIC when she gets there. She continues to make slow progress. She will at least try to move her limbs when the therapists tell her to and she has used her vocal cords to make sounds a few times. The therapists were pretty excited by that. Not much else for now, hopefully things will go well in Chicago.   

                     So, there it is. Bre's still slowly improving, but improving all the same.

                  Man, they sure have their hands full. Sure be glad when things reach the point where they can relax some and get some much needed rest and, of course, Bre is back in action.  

[Jay B]

She will at least try to move her limbs when the therapists tell her to and she has used her vocal cords to make sounds a few times. The therapists were pretty excited by that.

Here's the cool thing about this guys, the therapists tell us even a try is a success. Here's why. Say you ask her to move her arm. Even if she can't, but you feel her muscle tighten and she is trying to do it, that means that that particular pathway in her mind is reforming. IOW, she is rewiring. Will probably take a while, and lots of practice, but with that reconnection, she will eventually get it done. So every try is an eventual success if she keeps at it.

Wednesday will be a big day, I'll post when I find more out.

[BobbyR]

Get those crops in Jay!!!! 

[Topher]

I wish I could be strong for you, Jay. I'll pray for Bre.

[Sam Green Racing]

Keep in there Jay, you and your family remain in my thoughts.

Sam.

[bill440cars]

         Jay, the Prayers are still coming for you all. So good to hear the news Jay, so good.