Author Topic: a question for the medical people here (Read 1943 times)

fuzzybutt · « **on:** July 09, 2008, 02:49:55 PM »

my future granddaughter (due dec7th) very possibly might have something called trisome18 or edwards syndrome. what do you folks know about it? trying to get as informed as possible.

andy750 · « **Reply #1 on:** July 09, 2008, 03:08:25 PM »

Go here:

http://en.wikipedia.org/wiki/Edwards_syndrome

Prognosis is not good Im afraid.

fuzzybutt · « **Reply #2 on:** July 09, 2008, 03:27:51 PM »

seems to be the consensus from all the sources i've been to...........

Glenn Stauffer · « **Reply #3 on:** July 09, 2008, 03:53:53 PM »

You need to look into the accuracy of the test used in the diagnosis. Don't take anything as fact until it is confirmed by multiple tests - my experience with pre-natal testing is that the early tests are hardly worth the bother except to suggest whether riskier testing is in order.

fuzzybutt · « **Reply #4 on:** July 09, 2008, 07:15:54 PM »

it was the ultrasound that showed dual cysts in the brain, katie is at 18 weeks now.

Ecosse · « **Reply #5 on:** July 09, 2008, 07:28:39 PM »

My very humble two cents; I'd go along with Glenn and feel it goes with any diagnosis of consequence, prenatal to senior citizen.

Fuzz, I don't know you but my heart and prayers are with you and yours tonight.

God bless.

Sam Green Racing · « **Reply #6 on:** July 09, 2008, 07:34:13 PM »

You're in my thoughts as well Fuzzy

Sam.

gregimotis · « **Reply #7 on:** July 10, 2008, 09:06:55 AM »

Quote from: SamCR750 on July 09, 2008, 07:34:13 PM

You're in my thoughts as well Fuzzy

Sam.

Another; That's hard.

troppo · « **Reply #8 on:** July 10, 2008, 09:12:27 AM »

Theres a lot of wisdom on this site, try not to worry (i know, wasted words) but they cant be 100% sure at this point, once the baby is breathing and screaming they can do some real tests.
My thoughts are with you and yours mate.
Cheers
Troppo

BobbyR · « **Reply #9 on:** July 10, 2008, 05:48:40 PM »

Quote from: Glenn Stauffer on July 09, 2008, 03:53:53 PM

You need to look into the accuracy of the test used in the diagnosis. Don't take anything as fact until it is confirmed by multiple tests - my experience with pre-natal testing is that the early tests are hardly worth the bother except to suggest whether riskier testing is in order.

Glenn is correct. It depends on who did the ultrasound and who interpreted the results. I would find the best people in SC and do it again. I had a friend who had two daughters, he was a real hardcore NY Italian and he NEEDED a boy. The ultrasound showed his wife was carrying a girl. "I been looking at these for 30 years, never been wrong yet." the Dr. said. My man ran around the yard with a rope looking for a strong branch so he could end it all. Well out popped a perfect baby boy. If you can miss a pee pee what else can you misread.

fuzzybutt · « **Reply #10 on:** July 23, 2008, 02:30:41 PM »

well celebrations are in order! the amnio tests showed that the baby is fine, new ultra sounds show the same thing. i have to believe that all the prayers and good thoughts from you folks, my second family, helped.

bunghole · « **Reply #11 on:** July 23, 2008, 03:56:29 PM »

Quote from: fuzzybutt on July 23, 2008, 02:30:41 PM

well celebrations are in order! the amnio tests showed that the baby is fine, new ultra sounds show the same thing. i have to believe that all the prayers and good thoughts from you folks, my second family, helped.

Many congratulations! Grampa!

BobbyR · « **Reply #12 on:** July 23, 2008, 04:10:49 PM »

Congratulations, I am very glad the first tests were wrong.

troppo · « **Reply #13 on:** July 24, 2008, 01:57:20 AM »

Glad to hear you got good news grandpa!!!!!!!!!
You just have to start looking for a babyseat to go on the CB now

Ecosse · « **Reply #14 on:** July 24, 2008, 11:47:43 AM »

Quote from: fuzzybutt on July 23, 2008, 02:30:41 PM

well celebrations are in order! the amnio tests showed that the baby is fine, new ultra sounds show the same thing. i have to believe that all the prayers and good thoughts from you folks, my second family, helped.

Just learned of the good new!!

I am so relieved and happy for you and the family, congratulations!

I'm beyond words... a rare thing.

78 k550 · « **Reply #15 on:** July 24, 2008, 12:46:54 PM »

Great news.
Now try and get some rest

Paul

Sam Green Racing · « **Reply #16 on:** July 24, 2008, 01:09:30 PM »

Fantastic news Fuzzy, that'll be a great weight off your mind.

Sam.

fuzzybutt · « **Reply #17 on:** July 24, 2008, 05:16:30 PM »

i never much cared about kids one way or the other, had a vasectomy at 21 so i wouldnt have kids in fact. maybe because i'm older and people change as they get older but i am actually excited about having a grand-baby. my step daughter is naming her after my mom in fact.

Glenn Stauffer · « **Reply #18 on:** July 24, 2008, 05:30:57 PM »

Quote from: fuzzybutt on July 23, 2008, 02:30:41 PM

well celebrations are in order! the amnio tests showed that the baby is fine, new ultra sounds show the same thing. i have to believe that all the prayers and good thoughts from you folks, my second family, helped.

Good to hear. Your experience reflects our experience with the early tests regarding our 3 year old daughter. These early tests, for all their supposed value, sure put the parents through a lot of stress. My wife swears she wouldn't do it that way again and I kind of agree with her.

Again, I am very happy to hear the good news regarding your grandchild.

News:

Author Topic: a question for the medical people here (Read 1943 times)

fuzzybutt

fuzzybutt

fuzzybutt

troppo

fuzzybutt

troppo

fuzzybutt